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Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (46)
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Profile picture for dorothea58 @dorothea58

@jlharsh Greetings! I was diagnosed with ATTRv back in 2019. I got into a groove with treatment, then late last year was diagnosed with CLL. I do know of someone that got diagnosed with both at the same time. The two diseases are unrelated. So I now must learn to worlds. It is a lot of information to hold in my head.

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Replies to "@jlharsh Greetings! I was diagnosed with ATTRv back in 2019. I got into a groove with..."
Janell, Volunteer Mentor | @jlharsh | Apr 1 8:12pm

Life is keeping you hopping @dorothea58

You mention hereditary-familial ATTR and not the wild type . I read Mayo Clinic’s description of Hereditary ATTR Amyloidosis that I believe is the type you have:
..also called familial transthyretin amyloidosis. This inherited condition often affects the nerves, heart and kidneys. It most commonly happens with changes to the TTR protein made by your liver. This altered protein is passed down through families.

I am not sure how Hereditary type ATTR is different than Wild type. What type of symptoms do you have and how are you treating?

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