Connect
← Return to Hi, Iam just wondering how long and how hard for a diagnosis?
Discussion
Hi, Iam just wondering how long and how hard for a diagnosis?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 5 10:02pm | Replies (15)Comment receiving replies
@walkinggirl
Wow! 1 in 250!
I was sure it was under diagnosed here (Australia) as some cardiologists seem unfamiliar with it. Here, the rate of diagnosis in women is only 8 in 10,000. That's a lot of people being undiagnosed and untreated!
Thanks - I am learning a lot from this group
Replies to "@walkinggirl Wow! 1 in 250! I was sure it was under diagnosed here (Australia) as some..."
Connect
@pamela47 Greetings to our fellow big hearted people Down Under! Many cardiologists are unfamiliar with HCM in the states, too. In the cardiology office where I am a patient, different cardiologists specialize in different aspects of heart disease, I was fortunate to be assigned to one very knowledgeable about HCM at my first visit. I do not know if more men than women have HCM, beecause it's not linked to the x or y gene, only that the chances are 50% if a parent has it. Now, what can you do to help educate people - and doctors - about HCM? The Hypertrophic Cardiomyopathy Association, office in New Jersey, has outreach in several other countries. The website is 4HCM.org. May I suggest, contacting them and informing them about the fact that ONLY 8 women in 10,000 are diagnosed in Australia? I think the people in the organization would be shocked!