@joaniech2004
Good to hear you are much better and itching is under control.
Again, like you I tried to do things in the morning because after lunch I was in bed. The fatigue and breathless episodes made everything I did much more difficult. By afternoon I was in bed resting. Slept 10-14 hours a day, a lot for me.
I am doing great and consider Vonjo to be a miriacle drug. I've been on Vonjo for 7 weeks, feel better than I have in 3 years. I am active and do not feel exhausted all of the time.

First, my shortness of breath improved quite a bit, is gone now.
My spleen size went down, I can eat without discomfort.
The awful fatigue was slower to change but dramatically better in a month and gone by 6 weeks.
I have had only 3 night sweats in the last 4 weeks.
The Itching has improved a little, mostly the intensity but did have a glorious 5 day break,
Bone Pain is not as frequent but seems more intense.

Im so thankful to have this symptom improvement before my BMT. Hopefully that will occurr in May.

Best of luck to you. Take care