@joaniech2004
Hello MF FRIENDS ! At this point I have secondary HIGH RISK MF AFTER HAVING PV FOR MANY YEARS!
I had brutal burning of skin for many years! A prescription called HYDRAXYZINE helped a great deal! Speaking with your doctors about this.
I was on JAKAFI for coupe of years ! It brought my blood numbers down to extremely low level!!
So keep an eye on that !
Now it’s difficult to bring my numbers back up to normal levels! I am on OJJAARA FOR THE LAST SIX MONTHS! Very slow progress. All the itching burning 🥵 stopped once my blood levels took a dive !
Wanted to share my experience in effort to help ,
I hope you all who have been affected by blood cancers , keep trying and keep educating yourself!
I feel bad for you all who had to endure grossly incompetent and careless doctors !
Blessings to all of you
Hanya