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Waldenstrom macroglobulinemia (WM): Deciding treatment options
Blood Cancers & Disorders | Last Active: May 12 3:53pm | Replies (72)Comment receiving replies
I've noticed that some of you have doctors who are recommending treatment of WM when IgM levels are 1,000 or greater. My VA doctors are wanting to wait until my IgM levels reach 3,000. I have very severe copd and they say that due to the toxicity of the WM treatments, they would rather not treat me now. My most recent level was 1,010. Is there anyone else in this situation who may have some information about this?
Replies to "I've noticed that some of you have doctors who are recommending treatment of WM when IgM..."
@mike02041950 I joined https://www.nccn.org as a patient. It contains a lot of information. My Hema/Onco follows the NCCN guidelines.
@mike02041950 mine started at 1000 two years ago due to symptoms…
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@mike02041950 My treatment at MAYO is more based on if I have a symptom (like Neuropathy) than the IgM level.