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Essential Thrombocytosis General Questions

Blood Cancers & Disorders | Last Active: Apr 4 1:29pm | Replies (36)
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Profile picture for sdcgcarroll @sdcgcarroll

@nohrt4me I’m only taking a baby aspirin a day for my ET and I am generally a very active person. My fatigue is ridiculous however and becoming life altering. I’m in a semi angry phase because I have lots of things I want to do and no energy to do them. It’s frustrating to me.

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nohrt4me (Jean) | @nohrt4me | Mar 30 10:47am

@sdcgcarroll Yep. I get it. I was high energy and looked forward to a fulfilling retirement of volunteering and travel. But that's not how it has worked out. I'm 72 now and I try to accept the limitations and find purpose within them. Otherwise I just get irritable and become a trial to myself and others.

PS You asked about trials, and this site prob has the most up to date info on that:
https://mpnresearchfoundation.org/

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