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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: Apr 15 6:55am | Replies (133)

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@joaniech2004
It sounds like you and I had similarities in our journey to MF.
I'm sorry for what you went through in regards to physicians and itching. It's frustrating and upsetting to be dismissed.

I was given Xanax as well as many other potential medications for the Itching over the past 2+ years. None of the medications helped at all. It was very discouraging.

Since I started Vonjo, I have had some breaks in Itching days and the intensity is sometimes not as bad. I'm hoping that continues and gets better with every dose.

Thanks for sharing your story.
You are the first person I have heard of, having had a similar path to MF. Oddly, somehow knowing this helps.

Wish you all the best.

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Replies to "@joaniech2004 It sounds like you and I had similarities in our journey to MF. I'm sorry..."

@carolgk
Thank you, Carol. I'm doing much better with the Jakafi medication because my MF is due to a mutation of the JAK 2 gene. I still experience some itching, but it is under control now. My main issue now is the continued fatgue. I try to get things done in the morning and rest in the afternoon. How are you doing with the Vonjo medication?