Anyone else have a Redundant/Tortuous Colon?

I was also diagnosed with Redundant Colon. This was in 2024 at age 58.

I was prepping for yet another Colonoscopy, where the actual prep NEVER started in time to finish, before time to leave/arrive at Colonoscopy Center.

I am talking about me food fasting for as long as 3-4 days pre-scope. Then, starting the liquid prep at least 2 days prior.

FINALLY, my Colo-Rectal Surgeon told me that my entire colon was just too long and wide for my body.

I thank God he figured that out before he attempted my Rectal Prolapse repair, because that is the ONLY surgery that has ever come close to killing me. I am quoting my surgeon.

After nearly a 2 years of recovery, I am ok, except for the chronic constipation that all of the above apparently caused.

At least that beats the heck out of the chronic diarrhea that I had right after and for months after the surgery. 😡

@marilynmiller Hello! May I message you to ask about your surgeon? I am willing to travel anywhere to find a surgeon familiar with this condition and who understands the different mechanical relationships involved with a redundant colon, rectal issues, motility, etc. I have met with over a dozen colorectal surgeons, of course very skilled in the traditional indications for surgery (cancer, diverticulitis, etc.), but they do not seem to have much experience in more complex motility (such as outlet dysfunction) issues. Thank you so much for your generosity in sharing your story.

@lapxp
His name is Shane Svoboda ( pronounced slo bo da the 2 o's are long o and a is short a) 520 382 0458 6130 La Cholla Blvd Tucson 85751. Associated with Northwest hospital. He has a very good website too
He looks much better in person! His looks aren't important his expertise is. And his kindness is very. I'm unbelievable he acts like he knows you! His physician assistant is quite good too. If you want to message, please PM me on this site.

@marilynmiller Thank you so much!

I was officially diagnosed with a severe tortuous reductant colon in 2023. It was on my conoloscopy report in 2021 but no one talked to me about it. The original treatment was Miralax and fiber. I hated it. I have tried slippery elm bark a few times. Smooth Move tea, Chupa Panza tea which has ginger root, pineapple fruit pulp, flax seed, and cinnamon branch bark. It worked but I ever used it enough to feel comfortable knowing how to use it regularly for myself. I think you start with 1/2 cup. I had tried Emma in 2023 and went off of it 9 months later because my B6 was off the charts and I was having severe leg cramps. I was also taking a B supplement which I stopped. I struggled to keep thinks moving for the next year or so I used Elimipure and Prunes. That worked pretty good but I did not feel like I was emptying like I should. Emma heals the gut and Elimipure is supposed to get the bad bacteria, fungus and parasites out of your colon. So in August of 2025 I went back to Emma but but no other B vitamins. I supplemented with Prunes at night and Elimipure occasionally. Then I learned about eating a kiwi every night. I knew kiwi was was good for constipation. So I tried it. My regularity has never been better since the last colonoscopy. I eat the kiwi about an hour before bedtime and take 2 Emma every morning. My belly is flatter. I don't struggle to go to the bathroom. I feel much better. Sometimes mid week I feel stopped up, but I get back on track the next day just by continuing my routine. I may eat about 5 Prunes just to help things along. I think my meal plans mid-week help slow things down, but I cook for my family Wed. Evenings and go to community group Thursday evening and we have a meal there also. I have found that walking helps me too. I prefer to find more natural methods if I possibly can find something that works well for me. And I have to listen to my body and go when it tells me to, not put it off. Hope this helps someone.