My husband has been diagnosed with an unusual variant of WM. I am not sure if you are connected to the International Waldenstrom Myeloma Foundation (IWMF), but they provide a wealth of resources to help you get your questions answered. Here is a link to just the patient resources page. https://iwmf.com/get-support/ I follow a facebook group, the Waldenstrom's Macroglobulinemia Support Group and there is also an internet based discussion group if you don't use FB. https://iwmf.com/iwmf-connect-and-online-discussion-forums/ Both groups respond to questions. The IWMF also hosts an annual patient forum which will be held from May 1 -3rd in Columbus Ohio which you can stream at home. https://iwmf.com/iwmf-educational-forum/ I hope this helps connect you to more helpful information.