Does any neurologist prescribe Alpha Lipoic Acid?

Posted by bigjohnscho @bigjohnscho, Sep 25, 2024

R-ALA features very heavily on this forum as a potential remedy for peripheral neuropathy. Does any Neurologist actually prescribe it.

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Profile picture for arcuri24 @arcuri24

@cynbell

I share your frustration. Dealing with several doctors for my neuropathy and fallout from shin shave biopsy and I am repeatedly offered gabapentin which I always refuse. My neurologist did say that ALA could be helpful in dealing with neuropathy and I take 699 mg per day along with other supplements. I have celiac disease which caused my neuropathy so I need to be gluten free and must supplement because celiac folk usually have problems with absorption of vitamins and minerals. However, a recent visit to a primary care doctor was disappointing as he would not test my blood for copper, zinc because of insurance payment issues. Our medical system is set up with "gatekeepers" who limit the amount of investigation and care we can get. Big pharma and others may be to blame.

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@arcuri24 I'm very sorry to hear that you're dealing with this as well. I'm going to try the ALA, I don't see how it could make it any worse. I 100% believe that Big Pharma, and the "perks" Dr's get from prescribing certain meds plays a role in mediocre at best health-care, at least for some.

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Profile picture for helennicola @helennicola

@cynbell I’ve been taking gabapentin (300 mg. X1 day@bed) and ALA 600mg. 1xday plus a multi vitamin for 8 yrs. I don’t drink alcohol, eat a healthy diet, and exercise regularly which have helped to stop the progression and improve my neuropathy greatly. Hope you find some relief.

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@helennicola I don't ever drink alcohol and eat as healthy as one can on Disability. It's very hard to exercise when every moment, walking, sitting, everything is so painful. I don't know how people deal with this for years and years, it's been 2 of the bad 24/7 pain, and I don't know what's going to happen if I don't find some relief.

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Profile picture for cynbell @cynbell

@helennicola I don't ever drink alcohol and eat as healthy as one can on Disability. It's very hard to exercise when every moment, walking, sitting, everything is so painful. I don't know how people deal with this for years and years, it's been 2 of the bad 24/7 pain, and I don't know what's going to happen if I don't find some relief.

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@cynbell I always hate to hear about this awful disease causing so much pain for some. If you won’t try gabapentin or lyrica you should research low dose naltrexone. It has helped many with severe autoimmune driven pain. There are numerous forums you can access online. I’ve read that starting at a low dose (.50mg.) and gradually increasing (4.50mg.) works best. FYI - Many people have used gabapentin and lyrica since their onset with no serious side effects, we only hear the from the others who unfortunately have. 🤞🏻

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Profile picture for helennicola @helennicola

@cynbell I always hate to hear about this awful disease causing so much pain for some. If you won’t try gabapentin or lyrica you should research low dose naltrexone. It has helped many with severe autoimmune driven pain. There are numerous forums you can access online. I’ve read that starting at a low dose (.50mg.) and gradually increasing (4.50mg.) works best. FYI - Many people have used gabapentin and lyrica since their onset with no serious side effects, we only hear the from the others who unfortunately have. 🤞🏻

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@helennicola thank you so much for your kind words. I am on Gabapenton 300mg, any higher dose makes my blood pressure drop and my legs swell. I tried Lyrica, Cymbalta, Effexor, Amitriptiline, the 1st 2 made me suicidal within days, the others just didn't help at all. I'll keep trying things...

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My neurologist prescribed both Alpha Lipoic and folbee tab for me. On my first visit I told her that my primary doctor had prescribed Gabapentin which I refused to take after reading about the side effects. The two prescriptions I am taking are helping me and sometimes I use Mama Bears cream which also helps.

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Profile picture for cynbell @cynbell

@abbybarnes I have idiopathic Peripheral Neuropathy and my current Neurologist, has done nothing aside from prescribing all of the "1st line treatments" antidepressants gabapenton, you get what I mean, none have touched it. It's gone from my feet to halfway up my buttocks in 2 years. Total agony, 24 hours a day. I'm taking this list to my GP, no help there either yet, aside from B12 injections, I thank you for this list of things to try. I've tried so, so many medications, potions, lotions, at my wits end...

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@cynbell I woke up in 2021 two days after I decided to retire and I wondered what the heck was going on. I had pin pricks (paresthesia) from head to toes and in my eyes going off 24/7. After waiting for months I saw a Neurologist. They did major blood work and found nothing. So I agreed to a skin biopsy. It came back with Small Nerve Fiber Neuropathy, Idiopathic (meaning no known cause). And non length dependent meaning it didn’t start in my feet and go up. So he told me to take Alpha Lipoic Acid 600mg daily. I did and it made a huge difference. The pin pricks went down to almost nothing. But the pricks are ramping up. I am sure it is due to what is going on in my neck. All the discs have stenosis and I have two discs (one after the other that the ligamentum flavum has infolded also causing stenosis. Alpha Lipoic Acid works.
@rnlorena

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Profile picture for rnlorena @rnlorena

@cynbell I woke up in 2021 two days after I decided to retire and I wondered what the heck was going on. I had pin pricks (paresthesia) from head to toes and in my eyes going off 24/7. After waiting for months I saw a Neurologist. They did major blood work and found nothing. So I agreed to a skin biopsy. It came back with Small Nerve Fiber Neuropathy, Idiopathic (meaning no known cause). And non length dependent meaning it didn’t start in my feet and go up. So he told me to take Alpha Lipoic Acid 600mg daily. I did and it made a huge difference. The pin pricks went down to almost nothing. But the pricks are ramping up. I am sure it is due to what is going on in my neck. All the discs have stenosis and I have two discs (one after the other that the ligamentum flavum has infolded also causing stenosis. Alpha Lipoic Acid works.
@rnlorena

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@rnlorena I'm getting some as soon as I can this next week! Thank you so much for the information!

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Do any neurologist recommend R ALA

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Where do I find answer to my question

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