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@tx. You are first person (from several posts) who _hasn't_ said the usual "NO- doc would never agree, dangerous, etc." The brand that catches my eye and critical mind is Luma Nutrition curcumin. (Look up, 3rd testing, made in usa, etc). More descriptive than most (i.e. the "wonder versions/reviews on Amazon's many options). I have hetero FVL discovered from a provoked long flight 2018. In one leg, and tiny tiny one in lungs. Was on high dose- 1st 20 mg eliquis for couple of weeks, then down to 10g for about 2 1/2 yrs. Now at 5mg day divided, a.m./p.m. With all the shenanigans with RX pricing, government lobbying, delays and tariffs, I'm pretty much 'done' with the robotic "You must ...." scare ?tactics. Having had only one episode nearly 8 years ago, I'd love to at least move to 25mg/ plus tumeric day. Interesting that in a univ of VT medical research paper, the writer wrote that if person was dx with genetic FVL with one provoked event, treat/ dissolve and no more blood thinners ( manage with weight control, lots of water exercise - lots more). Would love posts to be read by MD's, med students, researchers. What's your story?
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@maribel8 I find it very disconcerting that the doctors fill one with fear and danger, regarding AFIB, which is what I currently have, a 4% burden. The fear they spread, in itself, is not healing or calming for the heart. I was taking Eliquis 2.5mg twice a day as a blood thinner, but I started to have unusual muscle and joint weakness, that got worse over time. I've also developed some neuropathy that I don't know the cause of. Eliquis Dosage was reduced to 2,5 mg, 2x a day, 4 days a week, and once a day , 3 days a week. The muscle weakness continued and I reduced the dosage, myself, to once a day, 2.5 mg. Tomorrow I am checking in with my hematologist to see how my eliquis levels are. I'd really like to get off of it all together. I am considering trying warfarin, but don't know if I can eat in such a disciplined manner as is required, and I eat a lot of greens and chamomile tea. I don't eat the same thing everyday. The brand of turmeric I noticed is also third party tested, https://biorootlabs.com/products/turmeric-curcumin-capsules-1000mg. I like that the one you mentioned is very simple , but the bioroots one has some fat in it which is also necessary for curcumin absorption, in my understanding. Other blood thinning herbs are ginger, cinnamon, and garlic. There's GOT to be a way to work with these in a health affirmative way.As one kind doctor said to me, I have to evaluate my choices and decide which risks I want to take- they all have risks. I am really struggling in this discernment process. This chat group seems to be more heart patients and some are more well informed than others, but no doctors or researchers log on. I hope they read it! There should be a way to work with these herbs, that is constructive and stable enough. Your comments welcome.