Connect
← Return to Waldenstrom macroglobulinemia (WM): Deciding treatment options
Discussion
Waldenstrom macroglobulinemia (WM): Deciding treatment options
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (55)Comment receiving replies
My WM double wild type was diagnosed after a BMB 6 months ago that showed 20% involvement. I was labeled MGUS since a routine blood test in 2024 showed IgM around 550. IgM increased to 2200 until it dropped to 1700 6 months ago. I'm still asymptomatic. My oncologists is very inexperienced, but is willing to allow a second opinion when treatment is needed. Good luck to you.
Replies to "My WM double wild type was diagnosed after a BMB 6 months ago that showed 20%..."
Connect
@dcuste
Thank you for sharing. Fortunately my hematologist is experienced with WM. She said she would normally start thinking about treatment when my IGM reaches 1000. She is considering doing it earlier due to my neuropathy.