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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Apr 10 8:08am | Replies (204)

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Profile picture for penelopem @penelopem

Not sure if I'm putting this in the right place. I was officially diagnosed with CTCL in 2020 upon switching dermatologists. The second dermatologist took one look at my leg and said he was pretty sure it was not eczema which my previous physician had been treating me for. The biopsy came back and there was my diagnosis. I wish I could help you with remedies on itching. I have only had small bouts of itching and the redness has pretty much been contained to one leg and below my knee. I just recently started getting small tumors which they will be scheduling 3 weeks of radiation for. I hope someone can give you a good remedy for your itching. Wishing you the absolute best.

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Replies to "Not sure if I'm putting this in the right place. I was officially diagnosed with CTCL..."

Hi @penelopem. Welcome to Mayo Connect. You’re absolutely posting in the right discussion to share your experince having Cutaneous T Cell Lymphoma. Kudos to you pushing for answers by switching to another dermatologist in order to get the correct diagnosis! It’s important to advocate for your health when you’re suspecting something isn’t right.

Are the small tumors located near the same area where your original symptoms occurred? Wishing you a positive outcome with the radiation treatments. When will you start the treatment?