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What are treatments for myelofibrosis?
Blood Cancers & Disorders | Last Active: Apr 15 6:55am | Replies (133)Comment receiving replies
@1pearl I’m glad you are finding good care now for this disease. Really helps getting a specialist. Every thing I read about Myelofibrosis says CALR is the least risky so you should be good. I’m going to ask my Provider about bone impact in May when I see her. I will let you know. Best wishes
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Hi @davi0937 ,
Thank you for your kind reply. I am glad I found a much better insurance for me this year and a great primary doctor who listens also. I suspect I will get another referral from her besides the MPN specialist that I see soon. My recent MRI of my hand just came in and it opens up more questions as the radiologist reported that osteomyelitis and septic arthritis need to be ruled out for my enlarged ring finger joint. It is so nice to not just be told I had an injury before that caused it like I was told last year although I never injured my finger! I continue to be a challenging case I know. I am just blessed to feel fine still not really knowing what I might have going on.
I wish the best for both of us and all the others.