Hi @davi0937 ,
No, none of my doctors have told me how myelofibrosis affects bone health. I have two very enlarged joints that are not at all painful. I was told from DEX scan that I have osteopenia and should keep taking calcium and vitamin D daily which I have done for at least thirty years because my aunt and Mom had osteoporosis and my primary doc all those years ago recommended that I take those. I am awaiting results for new MRI with and without contrast for my enlarged right ring finger joint. I still have no symptoms for which I am grateful. I finally get to see a MPN specialist at UCSD soon as I changed my insurance in January 2026 after being very disappointed in my first choice for Medicare. My labs still show high platelets so I take low dose aspirin. My red cells and hematocrit are normal but white cells very slightly elevated, liver tests normal. I have CALR1 and TET2 mutations.