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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 6 days ago | Replies (840)
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@disneyrn

Hello,

I was diagnosed with synovial sarcoma earlier this year and am looking for others with sarcoma to talk to - it's so rare, I've really not found much in the way of support or information for patients online.

Looking forward to discussing more!

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Replies to "Hello, I was diagnosed with synovial sarcoma earlier this year and am looking for others with..."
christine19 | @christine19 | Aug 2, 2018

I have a sarcoma of the blood vessel linings in my liver called epithelioid hemangeoendothelioma—EHE, for short. Diagnosed in 2008; 2 surgeries plus an arterial-delivered chemo therapy since then. Always have been asymptomatic. Doctors also monitoring my lungs, as it’s common to metastisize there too. So far, no sarcoma definitively diagnosed in my lungs.

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