← Return to Diagnosed with sarcoma? Let's share

Discussion

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 days ago | Replies (853)
Comment receiving replies
@disneyrn

Hello,

I was diagnosed with synovial sarcoma earlier this year and am looking for others with sarcoma to talk to - it's so rare, I've really not found much in the way of support or information for patients online.

Looking forward to discussing more!

Jump to this post

Replies to "Hello, I was diagnosed with synovial sarcoma earlier this year and am looking for others with..."
christine19 | @christine19 | Aug 2, 2018

I have a sarcoma of the blood vessel linings in my liver called epithelioid hemangeoendothelioma—EHE, for short. Diagnosed in 2008; 2 surgeries plus an arterial-delivered chemo therapy since then. Always have been asymptomatic. Doctors also monitoring my lungs, as it’s common to metastisize there too. So far, no sarcoma definitively diagnosed in my lungs.

VIEW AND REPLY