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Has anyone experienced Post Diverticulitis IBS?

Posted by badbelly @badbelly, Mar 25 8:29am

I have been sick for about a year and a half. I have had 5 diverticulitis flares during this time resulting in an 85 lb. weight loss. With the help of my pcp and 3 GI doctors, we have ruled out cancer and colon damage (colonoscopy), parasites, Celiac Disease, Crohn's Disease, Gastroparesis, mold sensitivity, and Lupus. I spend 2-3 days per week on a liquid diet just trying to survive. I have worked with a registered dietician to discover IBS and low Fodmap options but there has to be a better way to live.

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linda82 | @linda82 | Mar 26 6:51am

Having 5 diverticulitis flare ups in a year and a half is sad. The sad part is it will keep happening. Not sure of your age or health but, has your colon Dr. talked to you about surgery?

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badbelly | @badbelly | Mar 26 8:05am

It is very sad. I will turn 57 in May and other than these GI issues, I'm pretty healthy. I did have a GI doctor who wanted to do surgery but at that point I hadn't even had a colonoscopy yet. After the colonoscopy, a different GI doctor said there was no need for surgery (no damaged tissue in the colon) so that changed that trajectory. I am struggling to find any answers even after the colonoscopy. I thought that would give me all of the answers, but unfortunately it made it more mysterious.

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linda82 | @linda82 | Mar 27 10:13am
In reply to @badbelly "It is very sad. I will turn 57 in May and other than these GI issues,..." + (show)
Profile picture for badbelly @badbelly

It is very sad. I will turn 57 in May and other than these GI issues, I'm pretty healthy. I did have a GI doctor who wanted to do surgery but at that point I hadn't even had a colonoscopy yet. After the colonoscopy, a different GI doctor said there was no need for surgery (no damaged tissue in the colon) so that changed that trajectory. I am struggling to find any answers even after the colonoscopy. I thought that would give me all of the answers, but unfortunately it made it more mysterious.

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@badbelly I still think you need to see a colon/rectal surgeon. They did not realize how much scar tissue I had until my surgery.

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