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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: Apr 15 6:55am | Replies (133)

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Profile picture for Lori, Volunteer Mentor @loribmt

Good morning, @davi0937. While you’re waiting for replies from other Myelofibrosis members regarding their bone health, have you noticed a change in your arthritis?

Not sure if this is helpful but years ago a friend of mine experienced worsening joint pain with her MF. Her oncologist explained that MF can cause an increase in uric acid levels that may form needle-like crystals in joints, similar to gout, with symptoms of inflammation, swelling, stiffness and pain in the joints. Which is pretty difficult to differentiate from arthritis. So it might be helpful for your doctor to check your uric acid levels.

In the meantime, there are some foods that naturally help lower uric acid and help reduced inflammation from arthritis. (My dad had gout flare ups). Cherry Juice from tart cherries is great. If you can find the unsweetened Montgomery cherry juice, it often comes concentrated so you only mix about an ounce in a glass of water. Pineapple contains bromelain a natural enzyme that helps reduce uric acid, along with food containing Vitamin C.

Have you talked with your doctor about how MF might be impacting your bones? Do you feel the pain is getting worse? Is it primarily in the joints or do you feel just general bone pain?

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Replies to "Good morning, @davi0937. While you’re waiting for replies from other Myelofibrosis members regarding their bone health,..."

@loribmt Thank you- I haven’t talked to my Provider at Rochester Mayo about the bone health issue. I have arthritis in my hips knees- but so does my mom so not sure it’s origin. Just seems like with the fibrosis that bone health would be impacted. I will try the cherry juice recommendation! I’ve heard it’s good from other sources as well. I’ll also update here when I go back in May. Thank you