Good morning, @davi0937. While you’re waiting for replies from other Myelofibrosis members regarding their bone health, have you noticed a change in your arthritis?

Not sure if this is helpful but years ago a friend of mine experienced worsening joint pain with her MF. Her oncologist explained that MF can cause an increase in uric acid levels that may form needle-like crystals in joints, similar to gout, with symptoms of inflammation, swelling, stiffness and pain in the joints. Which is pretty difficult to differentiate from arthritis. So it might be helpful for your doctor to check your uric acid levels.

In the meantime, there are some foods that naturally help lower uric acid and help reduced inflammation from arthritis. (My dad had gout flare ups). Cherry Juice from tart cherries is great. If you can find the unsweetened Montgomery cherry juice, it often comes concentrated so you only mix about an ounce in a glass of water. Pineapple contains bromelain a natural enzyme that helps reduce uric acid, along with food containing Vitamin C.

Have you talked with your doctor about how MF might be impacting your bones? Do you feel the pain is getting worse? Is it primarily in the joints or do you feel just general bone pain?

Hi @davi0937 ,
No, none of my doctors have told me how myelofibrosis affects bone health. I have two very enlarged joints that are not at all painful. I was told from DEX scan that I have osteopenia and should keep taking calcium and vitamin D daily which I have done for at least thirty years because my aunt and Mom had osteoporosis and my primary doc all those years ago recommended that I take those. I am awaiting results for new MRI with and without contrast for my enlarged right ring finger joint. I still have no symptoms for which I am grateful. I finally get to see a MPN specialist at UCSD soon as I changed my insurance in January 2026 after being very disappointed in my first choice for Medicare. My labs still show high platelets so I take low dose aspirin. My red cells and hematocrit are normal but white cells very slightly elevated, liver tests normal. I have CALR1 and TET2 mutations.