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Stopping Evenity Early

Osteoporosis & Bone Health | Last Active: Mar 28 7:58am | Replies (158)

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Profile picture for oopsiedaisy @oopsiedaisy

@1950usa I felt much like you after 10 injections. I had so much knee pain that it was a constraint struggle to exercise. My knees felt so weak that I felt like I might fall stepping up on anything.

I did find something that helped me and that was beginning to take glucosamine and chondroitin supplements. I just had my eleventh shot two weeks ago and while my knees still hurt, they are not nearly as uncomfortable as they were. I get my last shot in two weeks and see the end of the tunnel. I will be happy to stop.

Regarding follow up treatment, I was curious about how long I could wait to give my body a chance to recover after the Evenity. I found out that it’s important to do the Reclast within a couple of months because our bodies will ramp up bone breakdown after a period of intense bone building. Our bone metabolism is not in equilibrium hence the need for an anti-resorptive immediately. Not what I wanted to hear but it makes sense.

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Replies to "@1950usa I felt much like you after 10 injections. I had so much knee pain that..."

@oopsiedaisy Good morning! I am sorry for what you have experienced but I also had the same sort of adverse reactions. I quit after 11 months and switched to Actonel but waited a couple of months as I felt like I had ruined my health and it was uncomfortable to even get dressed. Evenity took me out of osteoporosis range and I have continued to hover between osteopenia and osteoporosis in all DEXA scanned areas for almost three years now. I would NEVER do Evenity again as my muscles, bones and joints made it so difficult to move. I always have exercised, skied, run, mtn biked, etc so it was 100% the Evenity that affected me. I am in a way glad I did Evenity as it increased my bone density mostly in my spine (-3.8 to -2.1) but it was hard. It is my understanding the gains are mostly in the first 6 months so I am glad I stopped after 11 mos. Probably should have stopped sooner. The Actonel I think is still affecting some muscles/tendons but exercise helps. Trust what your body is saying. Prolia has been recommended but I am absolutely not doing that. My best to you.