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How does GFR move up and down so dramatically?
Kidney Conditions | Last Active: Apr 11 10:36am | Replies (32)Comment receiving replies
Hello, I'm the OP of the thread and lost touch. It turns out I did see Dr. Dahl and she confirmed I do not have ADPKD based on a genetic test but my eGFR is 19 and I am officially on a kidney transplant list at Northwestern Memorial Hospital and have a living donor, but she has not completed her testing. My blood type is B- which is rare. I'm also in the process of getting on the Mayo Clinic/Rochester kidney transplant list.
My concern is the anti rejection medications I'll have to take for the rest of my life, although NW reached out about a stem cell research program they have at Stanford U in CA. I realize this is the kidney disease forum and I don't want to scare anyone. Just saying my kidney function fell to where it is from infections, Covid, and Sepsis (not sepsis shock). We caught before that. It still hurt my kidneys.
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@mrainne it is good that you are approved/ accepted on the transplant list at a transplant center of a major University Hospital (Northwestern Memorial Hospital - as in Illinois?) Mayo Clinic / Rochester, MN of course is excellent too. It is even better that you have a living donor. My father in law was type B (I don’t recall if it was + or —, sorry) and my daughter was his living kidney donor. She is O+. It all worked out great. Anti rejection meds have come a LONG way in the years that transplantation has been possible. Yes, they do all have side effects (most meds do), but there are more options than ever before. I myself had a pancreas transplant 21 years ago and have had very little problems with the anti rejection meds / immune suppression meds that I was put on. As you prepare for upcoming transplantation you should visit that Transplant Group and many discussions available there in Mayo Clinic Connect. I’m sure you will find helpful information, hope and encouragement. Three of the other Volunteer Mentors have had transplants: 1 bone marrow transplant, 1 heart transplant and 1 who had a double kidney & liver transplant! Plus there are many members sharing their transplant journeys as well.