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Well, I spent 38 minutes and 42 seconds on phone being transferred all over KUMC trying to get appointment with Dr Parikh and then ended up at a voice mailbox. Just unbelievable, I was transferred 7 times! Wife got upset and called patient advocate, but got voice mail after around 10 minutes or so. I called my nurse navigator and got voice mail. I have left her voice mail before over the last months and she don't call back. However, today she called back. She said Dr Parikh wouldn't see me, he only see patients that have cancer that has spread or need hormone treatment. Also, made some other calls and end up getting voice mail after listening to long options on pressing this number or that number. Total time, 2:30-4PM and end up with he don't take someone in my status.
This is KUMC ranked cancer center by all the rankings very high. They were great for breast cancer- couldn't have been better. However that was in 2019. Did get some questions answered via MyChart from RO herself, which was good. Surgical doctor nurse did call, but didn't really answer questions, but would find out and call back. She thought it strange I would want appointment to talk.
Still leaning toward removal, but could get that done locally by Dr Rupp who has done lots of them. All depressing, was hoping for same kind of response wife got in 2019 at KUMC. Sorry, I am rambling.

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Replies to "Well, I spent 38 minutes and 42 seconds on phone being transferred all over KUMC trying..."

@diverjer
I’m a little surprised that with all the large cribriform They are not considering putting you on hormone therapy after treatment. Usually, if somebody has radiation, they do put you on hormone therapy after, even with 4+3, If there are aggressive issues.

I guess you’ll have to see what the doctors say.