1. < Polymyalgia Rheumatica (PMR)
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If you have PMR do you remember your childhood illnesses?

Posted by gud2gro @gud2gro, 4 days ago

As a child I never missed school (the last to catch whatever was going around and sick over whatever week' vacation fell), Born pre-vaccines I had all the child illnesses except whooping cough. I had mononucleosis the summer I was 11 when I was swimming at the YMCA. I also remember surprising everyone because I might wake up feeling ill and running a a high fever which would vanish by 2pm - no further symptoms. This continued into adulthood until my senior year. PMR showed up at age 79.Wondering if anyone had similar experiences because I'm curious if this might have been an indication of a "trigger happy" immune system.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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prettypatti76 | @prettypatti76 | 14 hours ago
In reply to @susanlf "My 2 rheumatologists continue to vacillate for almost 2 years on whether I have PMR or..." + (show)
Profile picture for susanlf @susanlf

My 2 rheumatologists continue to vacillate for almost 2 years on whether I have PMR or not. R A or not. I am only meloxicam and fill in with various Tylenol products. I am in constant horrible pain. I had all the childhood diseases- measles, mumps, chickenpox and the childhood shots. Plus the single shingles shot. I had shingles in the mid 1980’s.
On 6/11/24 I had the first of two shingles shot. Threw me into this constant pain Plus my bones deteriorated so much that I had reverse left shoulder replacement on 10/29/25. My right shoulder is in painfully horrible condition. Docs insist I aged into this. I absolutely did Not! I was a feisty, very active 74 year old when that shot put me flat out! I was on kevzara but it tanked my WBC. Now, I am asking for either a return to Kevzara at 3 week intervals or Actemera. I have lost vision but my eye doctors (ophthalmologist and optometrist) say I don’t have GCA. Thankfully! I will see my Mayo rheumatologist soon -the third and last appointment as he cannot spend any more time with me. Sorry to whine so much but I am very tired of being in Flare 100% of the time.

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@susanlf Hello! I feel your pain! And I really mean that. YOU ARE NOT WHINING!! PMR is really awful for many of us who suffer from this condition/disease. Sure, at first Prednisone is wonderful. Like, OMG, I am cured!! Wrong! As I tapered off, it of course came back with a vengeance! It is now almost April of 2026. I started Prednisone one year ago, April 1st. Results: Woke up blind in one eye from an "unknown" infection, in July.! Underwent an emergency Vitrectomy the next day. I do have severe macular degeneration, and have been receiving injections for over 5 years with no problems, until Prednisone. My eyesight has only recovered around 60% in that eye. Then came osteoporosis in my neck, along with severe and constant headaches! Prednisone?? Then cavities under crowns. Another Prednisone gift?? So I am waiting for Kevzara. I, too, was a "feisty", small, very active woman. It is really difficult to deal with this on most days. And, BTW, thank you for warning me about the shingles shot. I had shingles in the early 2000's. My doctor says I should take the vaccine. So far I have resisted. God Bless You!

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