@theglobalnomad1 Update: He went for another MRI yesterday - precursor to the 14th infusion which he will have next week. I asked him last night how he was feeling, To date. He's had no issues with the lequembe. the MRI's have read well, no brain bleeding or swelling. I don't know if we've made progress with these infusions. It's hard to tell, Sometimes, days seem better; the last few he was really confused. It has more to do with his inability to sequence conversations or logically come up with a game plan in helping me make a decision. I think he's lost weight, but I'm not sure if that's from the lequembe or if it's from what we;ve been through having to move out of our house quickly for mold, all the issues we've had, where we're still in a rental where we've been moving boxes, living out of boxes and in storage. So, we're both trying to breathe. I didn't remember my husband forgetful before, definitely to where he couldn't absorb or udnerstand a conversation where I'm asking for his help. All of that is left up to me know to figure it out and he goes along with it. I did contact our attorney today via email, as I'm thinking I need to get back into the lawyer to go back over wills, trust, etc., as now with his MCI, I'm hoping for the best but planning for maybe not the best. We're in a blended family, so I just need to think through if something happens to me and he progresses, what then. If something happens to him, and then me, what then?
It's all really confusing why we're trying to manage the infusions, the MRI's, but he's a trooper, And he has a good attitude, and wants to do his infusions.I I'm sure you know this. If your husband has any metal plates anywhere before the MRI, you have to take the card that shows where they are. My husband had a colonoscopy months back, with large polyps, so they had to put metal plates in his colon. The place doing the MRI needs to scan the card in with the metal plate detail prior to the MRI! Hope this helps. Good luck on the 8th MRI. Let me know how you make out.
Best,