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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 6 days ago | Replies (840)

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@deborahe

Similar to JeffK, I was diagnosed with a laryngeal cancer: Cricoid Chondrosarcoma. I was diagnosed in Dec 2013 and immediately scheduled for a total laryngectomy. After doing a lot of research on this rare cancer, I found studies published by Dr Jan Kasperbauer at Mayo Rochester and sought a second opinion from him. I had two conservative "debulking" surgeries in Dec 2013 and July 2016 to reduce the tumor size and retain functionality of voice, breathing, eating and drinking. With tumor regrowth after the second debulking procedure, it was decided that more extensive surgery was needed to remove the tumor and structurally support my airway. I had that surgery April 4, 2017 and am progressing through recovery. I had a temporary tracheostomy for 2 months. My case is very similar to Jeff K's and I am very thankful to have had his advice and support through my surgery and recovery. Our surgeons chose different methods to address our situations, but both have been successful.
I am also happy to help or listen.
Deb

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Replies to "Similar to JeffK, I was diagnosed with a laryngeal cancer: Cricoid Chondrosarcoma. I was diagnosed in..."

Hi Jeff, Thanks for letting me know. It has truly been a remarkable journey. I I plan to share it with my family and friends, and wish you and your family all the best. I'm so happy for your health and your great attitude. Life is sweet! PS: It's nice to have a face to put with the name!

Here's the direct link to @jeffk's article: https://sharing.mayoclinic.org/2018/04/12/retaining-his-voice-with-radical-treatment/
Thanks for sharing it with us, Jeff!

@jeffk. @deborahe. Love hearing the good news. Getting back to your workouts took lots of persistence. Very encouraging & motivating. Thanks for sharing. Ventibug