@trishanna, I can relate to the catnaps. Keep in mind that my surgery and recovery was from organ transplant, however, I used to nap daily during my recovery. Even now, I do not deprive myself of a good nap when my body wants one.
That you have a clean bill of health so far, sounds like a good thing.
It sounds like you are doing the right thing, to consult with specialists. One thing that I have experienced is that higher level specialists are best able to provide more answers and information about the 'rare' conditions. And that brings peace of mind, to at least know what is happening inside of our bodies and what we are facing.
I am completely unfamiliar with sarcoma, so I am happy that @kanaazpereira has provided some information for you to read and to prepare for your visit. I imagine that you already have loads of questions that you want answered. Are you writing them on as list as you think of them? Are you looking on your own for the additional doctors, or has your surgeon referred you to someone?