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Pulmonary Rehabilitation - quality of program

Lung Health | Last Active: Mar 25 9:00pm | Replies (13)

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@denzie Agreed, my idea was to switch and ask questions first. I left a message for site "manager" who did get back to me so I told him my issues. He set me up with an appointment with the Respiratory Therapist to go over my plan and monitor my O2 on the machines .... I told them I expect a written plan, and daily progress reports and careful monitoring and coaching on breathing exercises. I already know how to use exercise equipment!. For people with lung / oxygen issues it is important to track O2 over time. I am always on the alert for worsening pulmonary fibrosis - right now I am fortunate because it is stable. But the fibrosis limits my options to treat the lung cancer so I require serious exercise plan as I need my lungs as good as I can keep them . I also sent an email to their Patient Relations who called me the next day after I had spoken to the site manager. They said let them know if I need something. If you don't speak up, things don't change by themselves. That is what they mean in by being your own advocate in healthcare!

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@vic83 much respect for you and your advocacy. I'm doing Pulm rehab for the 3d time in 10 years. I've never seen anything as sloppy as the program you described. I hope others read this and learn from you.