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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
@dewz13
they do mine every six months and review labs with me, yes. I reduced my dose to EOD 500 mgs and my hair stopped falling out, and did extra labs and have heard nothing back. I assure no news is good news. I'd like to blame the ET or HU on the 15 extra lbs. I'm carrying but that would be a bridge too far.
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@jodyjazz
Did your oncologist reduce the HU dosage or was that your decision? I'm about to reduce my HU to every other day and will discuss with oncologist next week. He thinks I can just deal with side effects even though quality of life has diminished. He's very happy since all blood counts are low normal and that's all he wants to see.