@mmkennedy
Thanks for sharing your story.
I too am ET triple negative.
I have had this since 2002-2003 so about 24 years ago. I have been on baby aspirin the whole time and Hydrea for the past 11-12 years. I am 71 yo and doing well. I agree with all of your advice. Getting a MPN specialist opinion is key to good care. These specialists can then send recommendations to your local oncologist. My advice is do not let your pcp manage your care (they have even less understanding). The big cancer centers will usually have MPN specialists and they are happy to see you and make recommendations to your local oncologist. Mayo and MD Anderson are two of the big ones in the Midwest but there are others on the coasts. I strongly advise every ET or PV patient to see an MPN specialist at least once.