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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
I have been on Hu for about a month now. Have had one update on labs. I noticed my WBC declined. I guess this is why they say you are more susceptible to infection/ colds etc. My question is, does this level out? Do you review with your doctor at each check in?
Replies to "I have been on Hu for about a month now. Have had one update on labs...."
@dewz13 I’m curious as well. I’ve been on Hydrea for 6 weeks and my wbc count has dropped from 6.4 to 4.0. I see Dr next week and will get his thoughts.
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@dewz13
they do mine every six months and review labs with me, yes. I reduced my dose to EOD 500 mgs and my hair stopped falling out, and did extra labs and have heard nothing back. I assure no news is good news. I'd like to blame the ET or HU on the 15 extra lbs. I'm carrying but that would be a bridge too far.