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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
The congestion some of us experience is not from HU but from ET itself.
Always remember: You are almost certainly the only person with ET your physician has ever encountered, unless you are lucky enough to be in the presence of an oncologist specializing in MPNs.
Your allergist has no idea that ET's weird platelets can trigger your immune response.
It's all part of the fun of ET!!!
Replies to "@jodyjazz The congestion some of us experience is not from HU but from ET itself. Always..."
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@janemc
Hi,
I'm lucky (I guess) to be treated at Moffitt cancer in the Malignant Hematology department . Moffitt is thought to be the meca of cancer centers in Florida. But your right about the allergist, and other physicians, I have to explain it to them.