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DiscussionMDS and thin skin: What else to watch out for as time goes on?
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (8)Comment receiving replies
Replies to "Hi twit1949. I’m 77 also. Yes skin thin but think it’s age. I’ve just noticed my..."
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@hlmcneely
Please will you both make certain that your CBC-with-a-differential blood work is normal?!?! I had probable MDS for years. One hematologist told me I had it (2024), but it was "too early" for a bone marrow biopsy. He retired and the next heme doc insisted I did not have it. But I got my primary care doc to order CBC's every 3 months (because I had shortness of breath and low red blood cells). And MDS easily turns into AML (leukemia).
Sure enough: 18 mos after the first doc suggested my MDS diagnosis, my white blood cells and platelets dipped down near zero. It happened VERY fast. I was half dead by the time my chemo started. My current oncologist (I love her, never mind that she was my same doubting-doc) now says I saved my own life by pushing her to do the marrow biopsy.
BTW, I was 77 y.o. when this happened. So be alert and ask for some oversight on that bruising! It is a warning sign for many leukemia patients. And the wait-and-see approach can be very harmful. Getting a CBC is easy, and it is cheap. And it is reassuring if all is normal!