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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
@janemc This is very interesting to me. I went to an allergist due to constant post-nasal-drip and the annoying constant throat-clearing. He said I was not allergic to anything..........great, and that I had non-allergic rhinitis. Never thought about the HU. And never had this issue till started taking it. I just reduced my dose of HU to every other day 500 mg and my hair stopped falling out, but will try to OTC allergy pill again. Thanks. I know we all are different, and have different reactions but what the heck?/
Replies to "@janemc This is very interesting to me. I went to an allergist due to constant post-nasal-drip..."
@jodyjazz
I had same throat symptoms and reflux. Decided to try gluten-free diet.
Those symptoms became less in 1 week. It's been almost a year on gluten-free diet and symptoms have never returned.
@jodyjazz itchy nose and throat and post nasal drip since starting HU in Oct’25 for ET JAK2. I’m using Astepro with success ! Worth a try.
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@jodyjazz
The congestion some of us experience is not from HU but from ET itself.
Always remember: You are almost certainly the only person with ET your physician has ever encountered, unless you are lucky enough to be in the presence of an oncologist specializing in MPNs.
Your allergist has no idea that ET's weird platelets can trigger your immune response.
It's all part of the fun of ET!!!