Need Dr supportive of trying AlgaeCal instead of Prolia

Posted by stubbornmom @stubbornmom, Dec 10, 2024

I'm having a doosey of a time finding a doctor who is open to my using AlgaeCal Plus and Strontium boost as first line of treatment for Osteoporosis with compression fracture. They automatically want me to use Prolia and won't even look at the studies that I downloaded from AlgaeCal website. Is there anyone here who uses AlgaeCal in the New York (downstate) area that has a doctor that they would recommend?

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Profile picture for solarp @solarp

You might want to consider AlgaeCal carefully and look further into more research about the mechanism of action of Strontium on bone formation. It replaces Calcium with Strontium in your bones. My understanding is that the Strontium will make your DEXA results look better but your bones are not necessarily as strong. I don't think it offers any fracture reduction either. Keith McCormick, DC, has a couple of pages on the use of Strontium in his book Great Bones. You might want to look into his resource. Good luck.

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@solarp Its like we're in the same mindset. In 2023 @ 57 years old, I found out that I had fractures in my spine. No falls or accidents. So my Nuerosurgeon suggested I see a rheumatologist & a DEXA scan. It showed slight bone loss in my spine. None in the hips. So I found a rheumatologist & was started on Evenity injections. 2 injections each month for 1 year. Then my Vertibrae cracked in half @ L4-L5.
Ended up having surgery & a cage & clamps put in. At the end of that year I had a new DEXA scan, with slight improvement. So then moved on to Prolia for 1 year. I healed from the back surgery but continued to have numbness in my calf & foot. Imagining looked okay. Im very fortunate to have a wonderful Nuerosurgeon, who said we have to treat the symptoms even though the Imagining doesn't show anything majorly wrong. Thank god he did.
In surgery he found a knuckle shaped bone that had grown in my spine, trying to push out my cage & pressing on my spinal cord. It took 5 hours in surgery to remove the bone to not cause any nerve damage. The bone growth is suspected to be the result of the Evenity treatment. Due to that is a side effect & a risk. My new DEXA scan now shows my fracture risk has went from 11% to 20%. Now I feel like I live in fear of fractures & future bone growths. Im not even 60 years old yet. Im a very active person & hands on grandma to 2 wonderful little boys 6 & 4. Im supposed to start another round of Prolia in May. But in my mind, is this enough. I read about the product Algea-cal. I started taking their Algea-cal Plus & collagen, this week. I feel like I can use all the help I can get. I pray it lives up to what it proclaims it can do. I try to keep the mindset that Hey, my problems are fixable. Alot of people's aren't. But I have days where I think, is this it for me. A life of fear of fractures, pain & surgeries. In my mind I feel like I'm 20 but my body tells me, Oh, no your not your 99. I fear, will I be in a wheelchair, in the next 5-10 years?? Also since all this has started & being in a back brace for a long period of time, twice. I've gained 20 lbs. Which I know puts more pressure on my bones & my self esteem/confidence has went in the toilet. Since my second surgery was just in January 2026, I'm still in the back brace but when I'm out of it, does anyone have suggestions for the best form of exercise to strengthen bones? Thanks for listening.

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Profile picture for sherridz66 @sherridz66

@solarp Its like we're in the same mindset. In 2023 @ 57 years old, I found out that I had fractures in my spine. No falls or accidents. So my Nuerosurgeon suggested I see a rheumatologist & a DEXA scan. It showed slight bone loss in my spine. None in the hips. So I found a rheumatologist & was started on Evenity injections. 2 injections each month for 1 year. Then my Vertibrae cracked in half @ L4-L5.
Ended up having surgery & a cage & clamps put in. At the end of that year I had a new DEXA scan, with slight improvement. So then moved on to Prolia for 1 year. I healed from the back surgery but continued to have numbness in my calf & foot. Imagining looked okay. Im very fortunate to have a wonderful Nuerosurgeon, who said we have to treat the symptoms even though the Imagining doesn't show anything majorly wrong. Thank god he did.
In surgery he found a knuckle shaped bone that had grown in my spine, trying to push out my cage & pressing on my spinal cord. It took 5 hours in surgery to remove the bone to not cause any nerve damage. The bone growth is suspected to be the result of the Evenity treatment. Due to that is a side effect & a risk. My new DEXA scan now shows my fracture risk has went from 11% to 20%. Now I feel like I live in fear of fractures & future bone growths. Im not even 60 years old yet. Im a very active person & hands on grandma to 2 wonderful little boys 6 & 4. Im supposed to start another round of Prolia in May. But in my mind, is this enough. I read about the product Algea-cal. I started taking their Algea-cal Plus & collagen, this week. I feel like I can use all the help I can get. I pray it lives up to what it proclaims it can do. I try to keep the mindset that Hey, my problems are fixable. Alot of people's aren't. But I have days where I think, is this it for me. A life of fear of fractures, pain & surgeries. In my mind I feel like I'm 20 but my body tells me, Oh, no your not your 99. I fear, will I be in a wheelchair, in the next 5-10 years?? Also since all this has started & being in a back brace for a long period of time, twice. I've gained 20 lbs. Which I know puts more pressure on my bones & my self esteem/confidence has went in the toilet. Since my second surgery was just in January 2026, I'm still in the back brace but when I'm out of it, does anyone have suggestions for the best form of exercise to strengthen bones? Thanks for listening.

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@sherridz66 Get a referral to a physical therapist who is specially trained in working with osteoporosis and your issues and do the exercises recommended. Building muscle is vital.

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Profile picture for sherridz66 @sherridz66

@solarp Its like we're in the same mindset. In 2023 @ 57 years old, I found out that I had fractures in my spine. No falls or accidents. So my Nuerosurgeon suggested I see a rheumatologist & a DEXA scan. It showed slight bone loss in my spine. None in the hips. So I found a rheumatologist & was started on Evenity injections. 2 injections each month for 1 year. Then my Vertibrae cracked in half @ L4-L5.
Ended up having surgery & a cage & clamps put in. At the end of that year I had a new DEXA scan, with slight improvement. So then moved on to Prolia for 1 year. I healed from the back surgery but continued to have numbness in my calf & foot. Imagining looked okay. Im very fortunate to have a wonderful Nuerosurgeon, who said we have to treat the symptoms even though the Imagining doesn't show anything majorly wrong. Thank god he did.
In surgery he found a knuckle shaped bone that had grown in my spine, trying to push out my cage & pressing on my spinal cord. It took 5 hours in surgery to remove the bone to not cause any nerve damage. The bone growth is suspected to be the result of the Evenity treatment. Due to that is a side effect & a risk. My new DEXA scan now shows my fracture risk has went from 11% to 20%. Now I feel like I live in fear of fractures & future bone growths. Im not even 60 years old yet. Im a very active person & hands on grandma to 2 wonderful little boys 6 & 4. Im supposed to start another round of Prolia in May. But in my mind, is this enough. I read about the product Algea-cal. I started taking their Algea-cal Plus & collagen, this week. I feel like I can use all the help I can get. I pray it lives up to what it proclaims it can do. I try to keep the mindset that Hey, my problems are fixable. Alot of people's aren't. But I have days where I think, is this it for me. A life of fear of fractures, pain & surgeries. In my mind I feel like I'm 20 but my body tells me, Oh, no your not your 99. I fear, will I be in a wheelchair, in the next 5-10 years?? Also since all this has started & being in a back brace for a long period of time, twice. I've gained 20 lbs. Which I know puts more pressure on my bones & my self esteem/confidence has went in the toilet. Since my second surgery was just in January 2026, I'm still in the back brace but when I'm out of it, does anyone have suggestions for the best form of exercise to strengthen bones? Thanks for listening.

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@sherridz66 I am so sorry you are going through this. I am 72 years young and was put on Prolia when I was about 65 years young when I was in the stage of osteopenia. After being on Prolia for 6 years I ended up with severe jaw pain that I assumed was TMJ. It was not. When I went to an oral surgeon to find out what was happening, he told me to get off of Prolia IMMEDIATELY. Jaw pain is one of the known side effects of Prolia. Last summer I started on AlgaeCal Plus along with the Strontium Boost. My doctor in Denver supports my getting on this program because he knows how adverse I am to taking Evenity and Prolia. In 3 months I will be going for a DEXA scan (which is the one year mark) and even if my scores have a tiny improvement, I will continue with my regiment. Sadly, Evenity, Prolia and so many other drugs/infusions can have horrible side effects so I'm not willing at this point to take any of them. I saw the bad effects the Evenity and Prolia programs had on a dear friend and I steer away from them!
Focus on getting exercise every day. Try light weights to strengthen muscles that will support your bones. I religiously have worked out all my life at least 5 days a week and my doctor feels that this is making a big difference in helping me with my osteoporosis. I will update everyone with hopefully good news when I get my next DEXA scan!

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Profile picture for windyshores @windyshores

@stubbornmom since you have a fracture, have you considered a bone builder like Forteo, Tymlos or Evenity? I had spinal fractures and chose Tymlos not only because it grows new bone but it helps healing.

Do you have an endocrinologist? My doctors would not prescribe Prolia in the context of fracture and in fact don't use it much at all due to the rebound effect when stopped. Prolia also affects the effectiveness of the bone building drugs so you could end up with only Reclast as an option once you stop.

I personally see AlgaeCal abnd Strontium boost as being legitimate options for osteopenia or perhaps for maintenance after meds. I have been told by Keith McCormick author of "Great Bones", that strontium works too slowly for those of us with fractures.

I hope you can go back to your doctor and discuss a bone builder! Do you have an endocrinologist?

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@windyshores I don’t have an endocrinologist. I wish I did. I will ask for a referral. My GP frowned on AlgaeCal and I don’t know why..

Does Tymlos give you any side effects?

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Profile picture for deblb @deblb

Is your doctor prescribing the bio identical

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@deblb I am 70 and don’t want to start hormones again.

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I don't think you are going to find a doctor to support that. Strontium does go into your bones like calcium, but it is also used in fireworks.

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Profile picture for @lkgb @lkng67

@windyshores I don’t have an endocrinologist. I wish I did. I will ask for a referral. My GP frowned on AlgaeCal and I don’t know why..

Does Tymlos give you any side effects?

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@lkng67 GPs are generally skeptical of supplements, especially ones with a lot of ingredients. There can be interactions with needed meds and other conditions can be exasterbated…OP is really challenging…we need more research so we don’t have to chose between fractures and hard side effects !

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Profile picture for lylii @lylii

I don't think you are going to find a doctor to support that. Strontium does go into your bones like calcium, but it is also used in fireworks.

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@lylii Right on. The news about strontium with algae cal is not the same. Prolia is a medication, I believe, is anabolic, ie builds bones. I stopped taking algae cal.

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Profile picture for rosem1953 @rosem1953

@sherridz66 I am so sorry you are going through this. I am 72 years young and was put on Prolia when I was about 65 years young when I was in the stage of osteopenia. After being on Prolia for 6 years I ended up with severe jaw pain that I assumed was TMJ. It was not. When I went to an oral surgeon to find out what was happening, he told me to get off of Prolia IMMEDIATELY. Jaw pain is one of the known side effects of Prolia. Last summer I started on AlgaeCal Plus along with the Strontium Boost. My doctor in Denver supports my getting on this program because he knows how adverse I am to taking Evenity and Prolia. In 3 months I will be going for a DEXA scan (which is the one year mark) and even if my scores have a tiny improvement, I will continue with my regiment. Sadly, Evenity, Prolia and so many other drugs/infusions can have horrible side effects so I'm not willing at this point to take any of them. I saw the bad effects the Evenity and Prolia programs had on a dear friend and I steer away from them!
Focus on getting exercise every day. Try light weights to strengthen muscles that will support your bones. I religiously have worked out all my life at least 5 days a week and my doctor feels that this is making a big difference in helping me with my osteoporosis. I will update everyone with hopefully good news when I get my next DEXA scan!

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@rosem1953 sadly the thing about prolia that no one tells you is you can't just stop it or you will get prolia rebound. This is when you experience rapid loss of bone density and spike in bone turnover. It occurs because Prolia temporarily suppresses bone breakdown; stopping it causes accumulated osteoclasts (bone-eating cells) to become suddenly active, risking multiple spontaneous vertebral fractures. I know because it happened to me. I regret ever taking that medication as it cause three compression fractures all at once.

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Profile picture for sstopalian @sstopalian

@lylii Right on. The news about strontium with algae cal is not the same. Prolia is a medication, I believe, is anabolic, ie builds bones. I stopped taking algae cal.

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@sstopalian Prolia is an anti-resorptive medication, not an anabolic. It slows bone breakdown by reducing the number of osteoclasts by holding them at an immature stage of development. Your normal rate of bone growth does continue but it is not increased as it would be on an anabolic medication like Tymlos, Forteo, or Evenity.

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