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The BLINDSIDES

Caregivers: Dementia | Last Active: Mar 28 7:04am | Replies (25)

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Blindsides; I think that's what I was going through yesterday confused by it all with my husband. This disease is so baffling. one minute they appear okay; then it comes, subtle changes in the face, blank stares in the eyes, memory tripped up, meltdowns that lead to "stress" now his annoyance to anything high pitched with hearing, while I'm driving, the anxiety he has with any traffic situation, more stress, and now what appears to be some quirky movement with his mouth. It's hard to know but as caregivers, we are on alert, constantly. He's on lequembe his 14th infusion, and worried it's not working, but what does that really mean? Up, Down, Up, Down. This disease brings on constant fear. He goes for his MRI today, hopeful that the infusions are working, fearful that they may not be. I read Psalm 37.23 this morning......It is seeking God's direction and company that we find abundant life. God will get us where we need to go. God please help us, as we need your guidance every day, to follow your light.

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Replies to "Blindsides; I think that's what I was going through yesterday confused by it all with my..."

@kjc48 fun fact: Psalm 37:1 This psalm is an acrostic poem, the stanzas of which begin with the successive letters of the Hebrew alphabet… who knew? I didn’t.

Thank you for taking me there. I needed to read that Psalm….

@kjc48 please let us know how the MRI goes. My husband is on his 6th Kisunla infusion and will have the diagnostic MRI after the 8th.He is in the very early stages of AD and it is very frustrating to not really know what I'm seeing as far as any deterioration. Sometimes it seems as though the forgetfulness and confusion in conversations is just an extension of what has been going on for a number of years and I always attributed to ADD/ lack of attention/distraction. It is so hard to quantify! Wish there was a definitive cognitive test we could do every 6 months or something to measure any changes.