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Smoldering Multiple Myeloma and symptoms
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (57)Comment receiving replies
@maddogstormy
Good morning.
I am now past cycle 1 and have had two monthly doses and there are three remaining. So much to share and consider. I do have a question for folks. How have you handled deeply suppressed iga and igm immunoglobulins? I am receiving Privigen IV infusions to support IGg and that is a big help. From my understanding the iga and igm are my front line defense against Respiratory viral and bacterial infections. I am concerned and have really limited my exposure to public spaces and gatherings and I also know isolation is not helpful either.
Many thanks.
B
Replies to "@maddogstormy Good morning. I am now past cycle 1 and have had two monthly doses and..."
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@maddogstormy
I am also enrolled in the Dana Farber clinical trial 24-135. Just received my second step up dose of Linvoseltamab 4 mg along with the steroid and antihistamine.
I have intermediate SMM with gain 1q and monosomy 13. IGG Lambda. M-spike 1.8 and flc ratio of 30.1. Plasma cell percentage 10-15%.
Randomized into 200 mg track. One more step up dose, 25 mg, next week before my first full dose, 200 mg, on 8/10.
Just curious, what did you find most challenging about your experience.