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Tomorrows the day for my pet scan. I have to say, it is so good talking to people that know first hand about something. I love it here. Thanks all!

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Replies to "Tomorrows the day for my pet scan. I have to say, it is so good talking..."

@twitt1949 I’m so glad you are able to talk to our group members. There are some fine ones who are so helpful. Good luck!
Patty

@twitt1949

By the way, I've never been strapped in and I've had over a half dozen Petscans.

@twitt1949 Good luck tomorrow! I've not had a PET scan, but I have been in many "tubes" for plenty of spine MRI's or abdominal/pelvic CTs. I almost love the experience. I go into a Zen-ish state and get totally relaxed. This is not because I practice meditation or am trained to do this. Not at all! It's more like there is-nothing-to-do and no-place-to-go.
Oddly, I am now finding bone marrow biopsies to be similar. (I hesitate to say this because so many people hate them. So I apologize in advance.) Maybe I have lucked out with a really talented doctor: no pain (too numb). So I lie down and I quite relax. Weird, I suspect.
But I have a question. I have AML. And probably had undiagnosed MDS for a long time (low RBCs, chronic dyspnea, severe altitude problems with NO ability to adjust over time). Why have most of you gotten PET scans? How standard is that? I have severe spine problems (F; 78 y.o.) and untreated osteopenia (or osteoporosis?). Plus constant back pain and occas. new rib pain. My bone "demineralization" gets mentioned on Xrays and CTs. But no one has requested a PET scan. (BTW, NSAIDs, Tylenol, and even ASA are now forbidden rx due to neutropenia form AML. Thus no pain meds....)
Any thoughts?