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DiscussionBrain injury white matter, encephalopathy, and encephalitis
Brain & Nervous System | Last Active: Jul 20, 2021 | Replies (70)Comment receiving replies
Replies to "@techi Hello Lisa - let me add my welcome to Mayo Connect! I read your post..."
Theresa i was doing some resaerch because i have had some many diagnoses i sometimes dont know what i have. The doctors told me l have autoimmune encephalities or encephophaly but they really not sure. I had extra veins in my liver, which i never had anything wrong with my liver before in my life. My ana is very high and some test are high and some are low. When l was reading about autoimmune encephalopathy and liver disease and the tips l had. They talk about the symptoms l am having right now. I have been asked if l wanted a blood transfusion and if l have a living will. I was given a muscle relaxer and l read l had.cardiac arrest. So l am blessed to still be alive. I am allergic to so many meds and have so many allergies. When l have pain my husband trys to tell me to take pain meds but l wont because l am afraid that something will happen.So when you are told by a neurologist that you have conversion disorder or you go to the hospital because you fell and they said you were halluciating and the psychiatrs comes and want to know if you want to kill yourself and you are thinking why is she saying that, well l would say they are trying to keep something from you. I believe you should know whats going on and also what the doctor is looking for so you can know how you can help yourself. When l asked my pervious gastro doctor he retired. How long will l be taking my meds he said the rest of my life. Will l couldnt believe that but as l was reading some people can stop using the meds after 3yrs of surgery or some for life. And if you have to have a transplant your life expencenty is not long but l just trust the Lord that he will bring me out. And maybe it nothing to worry about. I will find out more when l go back to the mayo clinic in july. So l was asking others what they were going through and what they had to do to improve their health.