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What exactly does low dose naltroxene (LDN) do for fibromyalgia?
Fibromyalgia | Last Active: Apr 22 1:39pm | Replies (39)Comment receiving replies
@lena1 Please try it. It helped me very much by reducing pain and curing my insomnia. I have no bad side effects. The only problem is that you have to slowly work up to a maintenance dose so you won't experience benefits for a few months. Once you get to the maintenance dose of 4.5mg/day it can take 1-2 months to notice benefits. Also, it doesn't work for everyone, but you won't know unless you try it.
The other downside is that it's not covered by insurance and you must get it from a compounding pharmacy, where they make it in the proper doses, because it's not generally available to pharmacy's at the lower doses.
I posted this article before, there are lots of others out there can find by searching. https://chronicillness.co/low-dose-naltrexone-for-fibromyalgia/
Replies to "@lena1 Please try it. It helped me very much by reducing pain and curing my insomnia...."
@daisy17 Thank you.
Iii was just told I have Hashimoto's and now, a pill for that so I am further overwhelmed because Rhuem. Dr. didn't run the full thyroid panel 2 years ago like I requested ~ only the TSH. told me I had no thyroid issues. 2 yrs. of my life untreated. He assumed it was "unnecessary"
So I feel invisible and disrespected.
If I can find a new Dr. who cares enough to listen to me; maybe I'll try the low dose LDN.
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@daisy17
I experienced benefits immediately. I think the idea is that the
"maintenance" does is probably quite individual per individual. I am incredibly sensitive to medications and I started at 1.5 mg which I take at bedtime and upon waking, I feel amazing, and throughout just the first week; noticed positive changes; a shortness of breath went away, pains and aches went away, sinus' felt more clear, hands and fingers..more pliable, etc.
I am at 3.0 mg and am not sure I need to leave this place, but have definitely read and found that the fillers the compounding pharmacist uses can affect the effectiveness of the medication. I started with the lactose filler and it was amazing, but I have found I might be lactose intolerant after all of these years.
I switched to another filler, avicel, I think it was and another at a different pharmacy and felt nothing; neither of those fillers worked like the lactose did immediately. That may be why people think it doesn't work right away, but it, but it did with me.
I started using Lactaid products, milk, sour cream, even ice cream, so the little amount that they compound in the prescription no longer bothers me.