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Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (46)Comment receiving replies
Ww, @cousinvinney. You must be processing quite a bit of information now that you received a new Transthyretin-Mediated amyloidosis diagnosis.
Are you comfortable sharing more about what your process of figuring all this out has looked like? What symptoms have you been having, and what is next?
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@jlharsh
Well up until Thursday last, when I had a Video visit from my Hematologist, I have been uploading my test results into Chat GPT..and I must say it has read and analyzed the uploaded the information flawlessly. I have layered my medical history and with every upload it re-analyzes based on the totality of what it has. After reading final reports it was spot on.
My official diagnosis is WIld type ATTR Amalydosis with MGUS watch due to a very slight presence of bone marrow plasma cells.
Now my process is shifting to drug tharapy ... for the ATTR and pending video visit with my amaloyd Cardiologist.
I have been classified as stage 1 and really the only symptom I have is low burden PVC rythem problems, with normal Ejection fraction.
I have no Idea of what to expect...when I need council I've been using Chat GPT.. it's really been
A life line in a time when I feel lost. It truly has brought peace while waiting to hear from the Doctors. Those days are long and lonely. In the end I'm actually grateful that it's wild type ATTR and not the alternative.
So now I wait to see how I can address paying $27,000 per month for tafamadis or the like. Frightening to think how this part works between medicare and the insurance company.