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Anyone have experience with genetic testing?

Posted by mygoodgirls @mygoodgirls, Mar 16 6:58pm

I am meeting with a genetic counselor tomorrow for a consultation. Family history of prostate cancer: Dad and 2 uncles. Breast and cervical cancer: 2 first cousins. I had read that there is some genetic testing that can help predict recurrence odds to help guide treatment plan.

I am told that insurance doesn't always cover genetic testing and it can be spendy $$. Does anyone have experience with this and is it worth it? I think there may be a variety of tests...are some more important than others?

I would love to hear anyone's experience with this. 🙂

Interested in more discussions like this? Go to the Breast Cancer Support Group.

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@lkgb | @lkng67 | Mar 22 3:58pm

One great aunt had breast cancer. Sister had cancer, but not breast. Uncle had cancer but testicular. Auntie had carcinoids.

I came in looking for breast reduction and they found a small tumor in the right breast on May 5, 2025 on my wedding anniversary. I had surgery on August 1 2025. Too long to wait for mastectomy. I did fine after the surgery. It was 10 hours. I was really starting to feel good by October but was asked to do radiation since which was 15 doses over 3 weeks. Ended Nov 7th.

I saw someone say that the AI pills are easy; they are NOT! Easy to take but they have causes all kinds of pain in my points and debilitated my ability to move easily. My bones decreased to almost Osteoporosis. My brain is fuzzy and I cannot recall quickly post radiation.

My breast reconstruction has been good so far. I have one more surgery in May as radiation caused one breast to my higher than the other. Radiation was fine and they were kind and very helpful. I have a large number of moles now.

I have terrible headaches every day. I had a tooth removed as they found it had fused with my jaw bone, which may have caused the headaches. I still get headaches and have to take Tylenol 2-3 times a day.

I learned a lot about Oncoscore, Signatera (which I do every quarter) to check that the cancer has not come back. Having a test nest month again.

I did a lot of research. I am 70 years old.

Thank you for listening.

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@lkgb | @lkng67 | Mar 22 4:00pm

Yes, no breast cancer genes.

I have both celiac genes.

I cannot take Plavix due to a gene that negates its effectiveness.

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mygoodgirls | @mygoodgirls | Mar 22 4:40pm
In reply to @lkng67 "One great aunt had breast cancer. Sister had cancer, but not breast. Uncle had cancer but..." + (show)
Profile picture for @lkgb @lkng67

One great aunt had breast cancer. Sister had cancer, but not breast. Uncle had cancer but testicular. Auntie had carcinoids.

I came in looking for breast reduction and they found a small tumor in the right breast on May 5, 2025 on my wedding anniversary. I had surgery on August 1 2025. Too long to wait for mastectomy. I did fine after the surgery. It was 10 hours. I was really starting to feel good by October but was asked to do radiation since which was 15 doses over 3 weeks. Ended Nov 7th.

I saw someone say that the AI pills are easy; they are NOT! Easy to take but they have causes all kinds of pain in my points and debilitated my ability to move easily. My bones decreased to almost Osteoporosis. My brain is fuzzy and I cannot recall quickly post radiation.

My breast reconstruction has been good so far. I have one more surgery in May as radiation caused one breast to my higher than the other. Radiation was fine and they were kind and very helpful. I have a large number of moles now.

I have terrible headaches every day. I had a tooth removed as they found it had fused with my jaw bone, which may have caused the headaches. I still get headaches and have to take Tylenol 2-3 times a day.

I learned a lot about Oncoscore, Signatera (which I do every quarter) to check that the cancer has not come back. Having a test nest month again.

I did a lot of research. I am 70 years old.

Thank you for listening.

Jump to this post

Thank you

REPLY
Profile picture for mygoodgirls
mygoodgirls | @mygoodgirls | Mar 22 4:41pm
In reply to @lkng67 "Yes, no breast cancer genes. I have both celiac genes. I cannot take Plavix due to..." + (show)
Profile picture for @lkgb @lkng67

Yes, no breast cancer genes.

I have both celiac genes.

I cannot take Plavix due to a gene that negates its effectiveness.

Jump to this post

@lkng67
Thank you ❤️

REPLY
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