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How, when, where do you start the liver transplant process?
Transplants | Last Active: May 17 8:26am | Replies (58)Comment receiving replies
@colleenyoung thank you for putting things together. I desperately would like to her to be treated at mayo instead of here where we are. We live together. I watch over her. The lactulose has made her pee alot but not poop. She goes maybe once a day. I cant tell if its because she doesn't eat much. Her belly is swollen, its gone down with lactulose but not completely.
Replies to "@colleenyoung thank you for putting things together. I desperately would like to her to be treated..."
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@shacquie, My first step toward an appointment with liver transplant clinic was thru my local GI (gastroenterologist). He diagnosed my disease, and he monitored/treated me until I needed higher level care. And so, I am happy to read that your mom already has an appointment scheduled with a GI to look at her current health condition.
In my experience, I did not have the episodes of high ammonia or take lactulose, so I have no comment on that. However, each of us will experience different symptoms along the way and it can become very confusing. I did receive a transplant 17 years ago.
Please know that it is 'okay' to call the GI's office to check on an earlier appointment, or to report change in mom's condition.
Sending Hugs and Hope.