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Profile picture for craigcraig @craigcraig

@ajdo129 I agree with all these folks. While on medical stuff we need to represent ourselves and know what's going on I think for this your local doctor / insurance co needs to coordinate with Mayo on the steps needed to try to get you on the list. To much detailed and specific requirements for a layman to do on our own. After my liver cancer diagnosis my insurance co & local doctors had me go through about 3 months of testing + one trip to AZ before I was added to the Mayo list. All coordinated by local Drs + Insurance folks + Mayo. And then was very lucky to get the transplant in less than a month. Usually takes months or even years for some folks. Best of luck.

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Replies to "@ajdo129 I agree with all these folks. While on medical stuff we need to represent ourselves..."

@craigcraig we dont have much options here where I live in new mexico and I dont have anyone to help me with this. Its limited as far as doctors, care, Specialists. It could take weeks before even seeing one. Meanwhile her belly is bloated. The lactulose makes her pee alot but she's not really eating so she doesn't poop. I feel lost and confused and like time is of the essence but I dont know where to go now. Im only 6 hour drive from the mayo emergency room in Phoenix. Thoughts?