Connect
How does Kevzara help with PMR symptoms and pain? I am being weaned
I have had Pmr for 15 months now. It took forever to get diagnosed. I have been on 20 - 5 - 1 mg prednisone. My rheumatologist wants me to try kevzara. Is it worth it? I have been this way so long now I have forgotten what normal feels like.
Like
Helpful
HugInterested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
Connect
@kjoed53
You are your own best advocate. Sometimes you have to inc prednisone before you can go down. I am a big advocate of “self taper at times”. Another option is try splitting pred between morning and night so I wake up less painful.
Last.y….GO KEVZARA…it was my savior. If I was you….. I am a bull in a china shop…. Copy off the internet the Kevzara info and FDA approval and take it to your dr, if hard to get into the Rehumy, go to your primary care.
Your comfort/relief is KEY.
Good luck.
@joyl263
I did respond to it. The first day was amazing. I was pain free for the first time in months. The second day was also good and I slept 9 hours instead of the 5-6 I was before pred. By day 3 it was reducing the pain significantly but not eliminating it. I'm on day 4 now, having taken my pred two hours ago. My pain is significantly reduced but not gone. I don't know if I'm expecting too much or not.
@tweetypie13
I have an easier time getting an appointment with my rheumatologist than I do for my primary. I've looked into kevzara but I'm concerned with the side effects. I'm 73 so I'm already at a health disadvantage. I don't think splitting the dose would work for me. It's not like the pred is wearing off and causing the problem, it's more that the 25mg dose is not making me pain free. I'm not sure if everyone touting pred as a miracle drug for PMR is feeling pain free or less pain.
@kjoed53 Have hope, I was 78 when my journey began, am abt to be 80.
I had/have no other medical issues, 90% anti inflammatory diet for years, and had only 1 side effect, which came 7 months after starting the Kevzara…it was a known issue, drop in WBC….we then shifted my self administered shots to every 3 wks (instead of every 2) for 2 months and the blood work corrected .
Hope this helps.