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Is Essential Thrombocythemia a blood disease or cancer?

Blood Cancers & Disorders | Last Active: May 6 8:01am | Replies (179)
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Profile picture for hudson2019 @hudson2019

@nohrt4me I’ve Had ET two yrs Now On HU But Started Besremi two Wks Ago 50mg Have Drs Appointment March 27th See What My Blood Counts Are So Far No Side Affects Assuming She Will Up the Dose tapering Off the Hu

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nohrt4me (Jean) | @nohrt4me | Mar 22 9:47am

@hudson2019 Just a nosy question, so feel free to ignore: If you are in the States, how are you paying for Besremi? It is off-label for ET, and most insurance companies balk at paying for it unless a) you are of childbearing years, b) your doc documents unbearable side effects from HU (leg ulcers, for ex), c) the manufacturer provides a hardship coupon of some sort, or d) you are wealthy enough to pay out of pocket.

Are there tricks? I have had ET for 17 years, and I do wonder what happens if HU (which still works fine for me) stops working or turns on me.

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