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Profile picture for Wendy (wkrebs59) @wkrebs59

@nova11723
Hi there, I am still trying to put things together on what is really going on with my many different conditions so I understand what you mean about one day feeling normal and the next I am reminded I am not. When I worked my career in CT Computer Axial Tomography I worked really close with the neuro surgical team as they prepared the patients for the DBS. This was many years ago and I know the procedure and the technology has made great leaps and bounds. It is an option for many people and I would consider it if I ran out of all other options. The Vyalev pump has helped so much in reducing my daily medication that has been my life saver right now! This group has really helped me in focusing the direction I need to work on! I do have a neuro psychiatrist and help in these new medical conditions and how to deal with them. There will be more tests but one day we will finally know why so many conditions are part of the neurological disease we all seem to be going through.

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Replies to "@nova11723 Hi there, I am still trying to put things together on what is really going..."

@wkrebs59 I have had DBS mentioned to me a few times, and studies were cited that it is more helpful if you do it early in your progression. I have been resistant until medicine can't control my symptoms. One neurologist told me it was typically used after having the condition for 15 years. I am sure it works; I just don't want to use all my options, like you say. I am not sure I am right about this so other viewpoints are welcome.

One doctor asked me how I got Parkinsons. I thought that was a strange question.