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DiscussionFibromyalgia and Spinal Bone Spurs
Fibromyalgia | Last Active: Sep 17, 2017 | Replies (10)Comment receiving replies
Replies to "@robbinr I'm sorry to hear you have this pain. I have bone spurs on my cervical..."
@sandytoes14 Hi Jen: What great advice for someone who needs a pain specialist! Thanks for the information - if I ever need a pain specialist I'll be much better prepared and know what questions to ask. Teresa
@robbinr, sounds like you have some real issues there. But may I suggest you talk to a hematologist about the possibility of mis-folded protein disease deposit, or Amyloidosis of some kind. The reason I say this is that one sidelight of some Amy is the growth of lesions or growths of bone or other tissue along the spine or anywhere else in the body. I, several of my current family, and one of my kindred a years ago had these. I have had shots, surgery, braces, even massages and cardiac therapy (which nearly therapied me right to the grave). I would suggest Mayo-Rochester, Brigham and Women's, Stanford, U of Utah with ARUP Labs, etc. An experienced lab and a well-trained hematologist could deal with this in a hurry. Now, understand, the chances that you have this are not great, but if you do, and do not deal with the issues, ...... Check the videos on Mayoclinic.org called "Grand Rounds", especially done by Morey Gertz MD and Martha Grogan MD. And contact Amyloidosis.org for info. DO NOT rely on local labs for the work unless you live in Rochester, Los Angeles, Boston, Salt Lake or Palo Alto.
Thanks for the response. I'll see what Pain Management options are under my plan.
Robbin