Hi @vanohkw and @gcatalfamo,

I’d also like to introduce you to other Connect members – @601meagan @wymanjg @lizbets @judytru who had newborns and young children with heart disease. @judytru‘s daughter, for example, was born with coarctation of the aorta and aortic stenosis. If I’m correct, she is now 29.

Beside all the information @hopeful33250 has provided, the American Heart Association’s webpage has some great Q&A-type details about this condition https://www.heart.org/en/health-topics/congenital-heart-defects/about-congenital-heart-defects/tetralogy-of-fallot

@vanohkw, international patients can also request an appointment at any Mayo Clinic location online: http://www.mayoclinic.org/departments-centers/international/appointments
A representative from one of Mayo’s international appointment offices will respond to your request.
For information about billing and insurance, you can go online, http://www.mayoclinic.org/departments-centers/international/financial-services
Or call International Finance at 507-284-5063

@gcatalfamo, I’d be very skeptical about any information on the Internet – it’s certainly not a good source for health information or advice. A lot of it is written by people who are not medically trained, and also may have a conflict of interest!
Your doctor is the best resource; could you ask him to give you more information or an explanation that might ease your worries?