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Are there are any young onset Parkinson's patients in our group?
Parkinson's Disease | Last Active: Jun 3 2:10pm | Replies (26)Comment receiving replies
Hi @wkrebs59, I was diagnosed when I was 40, but I probably had it at least 5 years before that but it was missed by my former primary care physician. I have been living and working with it for about 9 years, and I am probably in stage II. Due to the support of my spouse and neurologists, I have treated it with a variety of medicine and have not had DBS yet.
Feel free to ask any questions, but I am not completely out of the Parkinson closet, so I may not be too specific with answers. This disease can drive you crazy sometimes. At times with the right medicine balance, sleep, and stress level, you can feel on top of the world and "normal," but the next day, Parkinsons locks you up to remind you it hasn't gone anywhere.
Replies to "Hi @wkrebs59, I was diagnosed when I was 40, but I probably had it at least..."
@nova11723
Hi there, I am still trying to put things together on what is really going on with my many different conditions so I understand what you mean about one day feeling normal and the next I am reminded I am not. When I worked my career in CT Computer Axial Tomography I worked really close with the neuro surgical team as they prepared the patients for the DBS. This was many years ago and I know the procedure and the technology has made great leaps and bounds. It is an option for many people and I would consider it if I ran out of all other options. The Vyalev pump has helped so much in reducing my daily medication that has been my life saver right now! This group has really helped me in focusing the direction I need to work on! I do have a neuro psychiatrist and help in these new medical conditions and how to deal with them. There will be more tests but one day we will finally know why so many conditions are part of the neurological disease we all seem to be going through.
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Hello @nova11723, and welcome to the PD support group on Mayo Connect. I appreciate you sharing about your journey with PD. Have you had any physical therapy, or have you been involved in any exercise programs to help with your PD symptoms?
What has been most helpful to you in dealing with Parkinson's?