Votrient was suggested for my dad’s leiomyosarcoma. The side effects look pretty scary. Would appreciate feedback from people who were on it - dose and side effects if any and outcome. Tumor shrinkage?
Hello....my Wife has been on Votrient 13 months. It has helped in her situation with leiomyosarcoma. Each patient will have different reactions to Votrient and different outcomes. The best aspect of this medication is it's not chemo!! There are possible impacts on liver function. Most patients report manageble side effects. One important step that may help is to start on a low dose...200mg....for a short period. Gradual increase in dosage is also helpful. It would be best not to jump right to the "recommended" dosage of 800mg, as that isn't well tolerated by most patients, and has very pronounced side effects. Most patients find success at 600mg....but go slow in the build up. Some tumor shrinkage may occur but that depends on size and location. The main strength of this medication is the reduction/elimination of tumor blood supply. This may prevent tumor growth. Also, don't expect immediate success. It may take some time for your Dad to adjust to the medication. It should be recommended to avoid alcohol consumption to give the liver a better basis to process the medication. While the listed side effects on many sites look scary, they try to cover all possibilities, and most patients dont experience a fraction of what's listed. Hope this helps your Dad and you in his health journey!! Best wishes!! ❤️
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Hello....my Wife has been on Votrient 13 months. It has helped in her situation with leiomyosarcoma. Each patient will have different reactions to Votrient and different outcomes. The best aspect of this medication is it's not chemo!! There are possible impacts on liver function. Most patients report manageble side effects. One important step that may help is to start on a low dose...200mg....for a short period. Gradual increase in dosage is also helpful. It would be best not to jump right to the "recommended" dosage of 800mg, as that isn't well tolerated by most patients, and has very pronounced side effects. Most patients find success at 600mg....but go slow in the build up. Some tumor shrinkage may occur but that depends on size and location. The main strength of this medication is the reduction/elimination of tumor blood supply. This may prevent tumor growth. Also, don't expect immediate success. It may take some time for your Dad to adjust to the medication. It should be recommended to avoid alcohol consumption to give the liver a better basis to process the medication. While the listed side effects on many sites look scary, they try to cover all possibilities, and most patients dont experience a fraction of what's listed. Hope this helps your Dad and you in his health journey!! Best wishes!! ❤️
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